“He won’t remember any of this.”

The most common phrase you hear as a cleft parent, “At least he won’t remember any of this.” The more and more you hear it the more you cringe. You’re right, he won’t remember the struggles. He won’t remember the sleepless nights trying to get him to eat. He won’t remember the long drives to… Continue reading “He won’t remember any of this.”

Liam’s Palate Repair Surgery Part 2

February 5th - Day 9. We quickly realized that we were not going home anytime soon. We had no clothes other than the pajamas we bought the day before and the clothes we wore to the hospital. Being military we couldn't just call family to bring us things we needed, so we had to make… Continue reading Liam’s Palate Repair Surgery Part 2

Liam’s Palate Repair Surgery Part 1

January 26th. Well somehow here we are again, on our way back to Charleston for yet another surgery. It's still hard to believe this is our life. All the same emotions we feel. Scared, anxious, nervous, sad and so many more. It’s hard to think positive about sending your baby into surgery. After the awful… Continue reading Liam’s Palate Repair Surgery Part 1

I don’t watch the clock…

The famous words from our surgeon, "I don't watch the clock". Every single time we see her she says this to my husband and I. To remind us not to panic when our baby is back in the OR. Not to count the hours that go by. Not to worry because he has been back… Continue reading I don’t watch the clock…

Preparing for your child’s lip repair surgery

Sending your baby into lip repair surgery is scary. You have no idea what to expect, what to prepare for, what to pack. You have no idea how they will recover or how they will eat. Your emotions are everywhere. You are stressed, scared, upset, anxious, nervous. While trying to soak up every moment with… Continue reading Preparing for your child’s lip repair surgery

It’s not what you see, it’s how you see it

“It’s not what you see; it’s how you see it. Choose to see with compassion. Choose to embrace with understanding. Choose to be kind.” From the day we found out about Liam’s cleft lip and palate I have been afraid of how others will treat him. How others will act towards him. What will they… Continue reading It’s not what you see, it’s how you see it

To the mama who just received her child’s cleft diagnosis

"Your baby has a cleft lip and palate” something no mama wants to hear. That very second, all the emotions one can feel hit you like a ton of bricks. You are upset, scared, mad, confused... The excitement of your pregnancy has quickly been taken from you. You feel so alone, like no one can… Continue reading To the mama who just received her child’s cleft diagnosis

Liam’s Lip Repair Surgery

The day we've been dreading since we found out about Liam's cleft was finally here. We were less than 24 hours away from his surgery and I still sat there wondering how the hell we were going to send our baby into an operating room. My anxiety was through the roof for weeks leading up… Continue reading Liam’s Lip Repair Surgery

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"A "cleft" is a split or a divide. Cleft lips and palates happen before birth. A baby can have a cleft lip, cleft palate, or both. A cleft lip may be on one or both sides of the upper lip. The split may also be in the upper jaw and gum. A cleft palate is… Continue reading 1 in 700